What Autism Safety Really Means

ableism, Autism, Disability, Education, Infographics, Writing

The two hottest takes when it comes to “Autism Safety” – in the “autism community,” that is – always seem to be wandering/elopement and police interactions.

Elopement or wandering refer to the problem of autistic children (not always children, but almost always) who run off unattended, often leaving an enclosed space like their home or school. And, as a parent myself, I do understand this worry – to an extent. Naturally the idea of one’s child getting lost and/or getting into dangerous situations takes one’s breath away to even imagine.

But in the grand scheme of an autistic life, how pressing is this issue really? Parent-led organizations sometimes run scary stories about the dangers of elopement. Recent studies have shown that about half of autistic children elope at least once, and half of those elope long enough to cause serious concern. That does sound worrying, but let’s keep this number in mind and I’ll return to it in a moment: 25% of autistic children have significant elopement incidents. Other factors to keep in mind: most of those children are nonverbal, and elopement peaks at age 5.

The other hot topic in safety is about police interactions. And while this is a key safety issue for autistic people, often the ways that autism parent communities and neurotypical-led organizations discuss this issue are problematic, particularly when they neglect the intersection of systemic racism with disability rights. Skirting the autism-race interaction in conversations about police and first responders not only makes our conversations about safety incomplete, it also makes our proposed solutions severely inadequate at best.

What the parent community’s hot safety takes amount to tends to be a clamor for more neurotypical (NT) control over autistic people. Wandering? Police interaction? For NT parents and experts, the solutions are about GPS tracking devices, autism registrations, and more compliance training for autistics.

These solutions by their nature elide the realities of autistic and otherwise disabled people of color. What kinds of issues might arise for a population that is already at risk of being racially profiled? Given the risks, how can we assure people – is it even ethical to assure people? – who already feel unsafe or unable to trust law enforcement to protect them that they should entrust police and other first responders not to use their disability status against them in some harmful way. And that’s to say nothing of the ethical repugnance of pushing even more compliance training upon black and brown folks who historically have been shown how no amount of compliance will protect them from racist abuse.

Neurotypical parent/expert control of autistic people that strips autistic people (of any age) of autonomy and ramps up compliance training, in fact makes autistic people less safe in the long run. When parents, teachers, and autism “experts” have tunnel vision that focuses on autism itself as a threat to autistic people, rather than taking a careful accounting of how ableism affects disabled people – and how other forms of oppression intersect with ableism to compound the harm done – they actively endanger autistic people.

I’ll remind you now of the figure above that told us 25% of autistic children have seriously concerning elopement incidents, peaking at age 5.

Now let me tell you about what Autism Safety really means:

Abuse and Violence
  • Disabled children are 3.5 times more likely to be abused or neglected than non-disabled children
  • Disabled people are 3 times more likely to be victims of serious crime than non-disabled people
  •  Exact figures are unknown, but numerous studies have estimated that the number of people killed in police interactions who were disabled is at least 50%, and likely much higher as these calculations under-count people with psychiatric disabilities
  • Black people are nearly 3 times as likely to be killed by police than white people; therefore, we MUST include racial issues in addressing autism safety with law enforcement
Psychological Effects
  • 70% of autistic people also have a psychiatric disability such as depression or anxiety
  • 30-50% of autistic people have reported having suicidal thoughts or attempts
Bullying
  • 60-80% of autistic students report being bullied at school
  • 40% of parents of autistic students report their children were bullied
  • 22% of those who were bullied report being bullied all the time”
Restraint & Seclusion
  • While only 12% of public school students are disabled (covered by IDEA), 75% of students restrained at school are disabled and 58% of students secluded and isolated at school are disabled.
  • 25% of arrests and referrals to police are disabled students – that means a disabled student is twice as likely to be arrested for a disciplinary incident at school.
  • Federal data shows public schools reported 163,000 incidents of students being restrained in one school year.
  • 40% of students restrained at school are autistic
  • 50% of students secluded/isolated at school are autistic
  • Of the disabled student population, only 19% are black, but they make up 36% of those who are restrained and secluded – this means that among disabled students, black children are twice as likely to be restrained and secluded
  • 7,600 of the incidents of restraint involved mechanical restraints (i.e. not restrained merely with school staff’s hands/arms)
  • Students were secluded in scream rooms” 104,000 times in that school year
  • 20 public school students died while being restrained at school between 1988-2008
  • In many states (including mine), there are no legal restrictions on the use of restraint and seclusion in schools

Many of these risks to autistic children are much more prevalent and dangerous than the risk of elopement, and many continue to affect autistic people throughout our lives – as our high rates of depression and anxiety show. And yet, these are the dangers that are rarely discussed by parents and autism organizations. These risks do not seem to inspire as many panel discussions, safety curricula, training sessions, and special safety programs. Perhaps because, by and large, they require change on the parts of the everyone else but the autistic child.

Even more crucially, the parent/expert safety programs that are most popular – the GPS trackers, registries, and compliance training – actually put autistic people at greater risk to our real threats: abuse, victimization, discrimination, isolation, and psychological trauma. Trackers, registries, and compliance make us LESS SAFE. Worst of all, they will have the strongest negative effects on the segment of the autistic population that is already the most vulnerable – you know, the ones we never talk about? – those of us who are not white.

Of course we can’t wait around for mainstream culture to protect us, so here are some safety tips you can really use. And please see my Autism Safety PDF for more information and sources for all of the above statistics.

SAFETY TIPS
  • For Autistic People:
    • learn how to recognize and report abuse
    • learn what to do if you or someone you know is feeling suicidal
    • learn how to avoid interactions with law enforcement
    • advocate for community change that lessens the frequency of interactions with LE, and the risks of violence during interactions with LE
    • learn what to do if you get lost or need help in public spaces
  • For Families: 
    • learn to recognize and respond to signs of abuse, neglect, and bullying
    • learn strategies to reduce the risk of LE involvement and violence
    • learn to recognize and respond when someone you love feels suicidal
    • teach your loved one survival skills, including a safety plan for getting lost 
  • extra tip: medical ID bracelets are safer than ID cards or registries!
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Social Skills for Everyone

ableism, Autism, Disability, Education, Friendship, Infographics, Neurodiversity, Parenting

This slideshow requires JavaScript.

[Each of the slides above has its own image description. Slideshow can be paused for ease of reading text. Full transcript at the end of this post, with a downloadable PDF.]

Issues of social inclusion are often persistent throughout a disabled person’s lifespan. Lack of inclusion can be a vicious cycle if non-disabled people are unfamiliar with how to include and interact with disabled people in their community:

1. disabled people are excluded, are segregated to disabled-only spaces, and/or withdraw from community life when they are socially rejected

2. non-disabled people continue to have social spaces and groups that have no disabled people in them, and they never become familiar or intimately connected with disabled people

3. disabled people continue to be rejected or excluded by non-disabled people who are unfamiliar with how to include us

And, REPEAT.

How do we break this cycle? Traditionally, most of the onus has been on disabled people to assimilate and “normalize,” but this not only doesn’t work well, it’s unfair and ableist. Mainstream culture is beginning to realize that non-disabled need to do more to include us without trying to “fix” us, but it’s crucial to understand that acceptance is more than just a feeling. It’s a series of actions, and for most it will require some learning and listening to disabled people.

I have a dream that parents of non-disabled children will begin to talk to their kids about disability, as early and as often as possible. Just as with other issues of discrimination, it’s not enough to trust that your kids will be “nice” – even nice, lovely, kind hearted children may discriminate against or exclude disabled children if they simply do not know how to include them, and don’t understand people who are different from themselves in ways that a child can easily perceive.

This guide is a start. Please please share it with your kids and talk to them about what disability inclusion means. It’s not about pity or charity, it’s about equality.

Social Skills for Everyone PDF

FULL TRANSCRIPT:

Cover.
Infographic cover has the title Social Skills for Everyone,” subtitle making friends and getting along.” Above the title are two human figures, one waving their arms with a speech bubble saying hi!” and the other with arms akimbo and a speech bubble containing ellipses. 
Page One.
Infographic text says: You might have noticed… there are all kinds of people in the world. no two are exactly alike. Not even twins! You probably won’t be friends with everyone you meet (and that’s ok!) but learning to get along with people makes life a little better for all of us.” One group of human figures is multicolored, with a green figure waving and saying hello!” A pair of orange figures who look the same as each other stand side by side, one saying I love drawing comic books” and the other saying I don’t draw. But I love Minecraft!” 
Page Two.
Infographic text says: There isn’t only one right way” to socialize… Just like there isn’t only one way to play! Everyone has their own style figure adds, and I think that’s cool!’ and learning someone else’s style is how you include someone new figure adds, and hey, remember… next time, the new person… could be you!’” Bottom image shows a green figure standing in foreground holding/touching their own head, with other figures in the background playing and one waving in greeting to the green new person.
Page Three.
Infographic text says: When you meet someone new… it’s nice to greet them and ever nicer to invite them to talk or play with you.” Image shows two human figures in foreground and two more playing in the background. A green figure waves and says to the orange figure, Hi, I’m Alex. Do you want to play tag with us?’ More text: but what if they don’t answer?” The green figure stands with a question mark thought bubble, while the orange figure touches/holds their own head and stands with a thought bubble containing ellipses.
Page Four.
Infographic text says: It might NOT mean they don’t want to play. Try this! Wait a few more seconds some people just need a little more time to answer questions or think of what to say.” Orange figure has a speech bubble that says …………okay!’ Move so they can see your face some people need to read your lips while you talk.” Two green heads in profile face each other, one with sound waves around mouth. Ask in a different way if they aren’t sure how to answer, using different words might help.” Green figure points to the side and says to orange figure, He’s it.” Let’s run!’ Or maybe just try again later. They might not be ready to join in yet, and that’s okay too!
Page Five.
Infographic text says: Some people do not speak at all (or not very much) but you can still include them! People who don’t speak communicate in other ways, like: Body Language! (orange figure in a variety of poses/gestures), using their voice in other ways (orange laughing face with speech bubble hahaha!’) or even using an app on a tablet! (orange figure holds a black tablet which has a dialog box saying okay. let’s play!’)
Page Six.
Infographic text says: When you meet someone who seems different, you might notice that they look, talk, or act differently than anyone else you’ve met before.” A green figure stands touching/holding their own head with a question mark thought bubble. It’s okay to ask polite questions.” A green figure asks, Does that hurt?’ to an orange figure with a small red mark on their face, who responds, No. It’s just a birthmark.’ More text: It’s good to celebrate our differences AND remember we aren’t all that different on the inside we all pretty much want the same things: to be accepted, to feel we belong, and to have fun doing things we enjoy.” At the bottom is a row of human figures: a green one with arms akimbo, orange one with heart-shaped birthmark, gray one waving arms, green one with headphones high-fiving a gray one with an orange wheelchair.

Ableism Therapies

ableism, Autism, Disability, Neurodiversity

Ableism Therapies

[The following text is also a transcript for the featured image infographic]

The only evidence backed treatment for ableism is listening to disabled people and learning from us.

Organizations

Twitter Hashtags

  • #CripTheVote
  • #ActuallyAutistic
  • #FilmDis
  • #AutisticWhileBlack
  • #TheFutureIsDisabled
  • #TheFutureIsAccessible

Awareness Campaigns

 

Intro: Ableism Awareness Month

Part 1: What is ableism?

Part 2: How many people are affected by ableism?

Part 3: What causes ableism?

Part 4: Is there a cure for ableism?

Ableism Awareness Wrapup Post

Is there a cure for ableism?

ableism, Autism, Disability, Neurodiversity

[The following text is also a transcript for the featured image description]

Is there a cure for ableism?

Effective treatments for ableism include:

Education

Everyone must make an effort to learn about disability issues and to examine and confront ableist bias ourselves and our communities. We all have a duty to understand and combat ableism.

Accessibility

Inclusion and accessibility are civil rights, not special privileges. It is everyone’s obligation to find out how to make our communities and spaces more accessible, and endeavor to include disabled people.

Intersectionality

The rights of disabled people are intertwined with non disabled people’s civil rights; our political activism, our votes, and our policy making should always be inclusive and intersectional.

Center Disabled People

Disabled people must be centered in our own lives and in disability advocacy; this means we have autonomy in our personal lives and we take the lead in disability rights organizations. Non-disabled people should have supporting roles as needed.

Sidebar has an image of two pills and the text, “There’s no magic pill for prejudice.
Remember, bigotry is NOT actually a disease!”

Intro: Ableism Awareness Month

Part 1: What is ableism?

Part 2: How many people are affected by ableism?

Part 3: What causes ableism?

Part 5: Ableism Therapies

Ableism Awareness Wrapup Post

What causes ableism?

ableism, Autism, Disability, Education, Neurodiversity

[The following text is also a transcript for the featured image description]

What causes ableism? 

* There is no single cause of ableism; rather, it is a complex and interrelated set of attitudes, assumptions, and prejudicial biases. Ableism develops from a combination of individual prejudice and environmental factors, such as widespread normalization of ableism, misinformation by ableist institutions, and societal lack of inclusion for disabled people.

* Some important risk factors for ableism are unfamiliarity with disabled people and ignorance about disability issues and disability rights. Tragically, an ableist culture that fails to provide access and true inclusion for disabled people has a high risk of worsening the ableism epidemic.

* Vaccines do NOT cause ableism; on the contrary, a large scale program of inoculation against ableism, through the inclusion of disabled people and education for non-disabled people, may protect individual people and major societal institutions from falling victim to ableism.

[Image has a graphic image of a syringe at left, and “erinhuman.com” at bottom right]

Intro: Ableism Awareness Month

Part 1: What is ableism?

Part 2: How many people are affected by ableism?

Part 4: Is there a cure for ableism?

Part 5: Ableism Therapies

Ableism Awareness Wrapup Post

How many people are affected by ableism?

ableism, Autism, Disability, Neurodiversity

[The following text is also a transcript for the featured image description]

How many people are affected by ableism?

Everyone is affected by ableism.

* At any given time, about 1 in 5 people worldwide has a disability.

* People who were not born disabled, or aren’t currently disabled, may become disabled later in life.

* Some people who do not identify as disabled or recognize themselves as disabled are in fact disabled and directly affected by ableism; for example, people with psychiatric disabilities such as depression and anxiety.

* Disability Rights are highly intersectional; civil rights issues for women, people of color and LGBTQ+ people are intertwined with disability issues. Disability rights also overlap with issues such as healthcare, education, poverty, and more.

[sidebar has an image of a caution sign and the following text]

CAUTION

Descriptions of ableism as a disorder is this series are satirical and not to be taken literally.

Ableism is not a form of mental illness or psychiatric disability; in fact, blaming bigotry or prejudice on mental illness or any other disability… IS ABLEIST!

Intro: Ableism Awareness Month

Part 1: What is ableism?

Part 3: What causes ableism?

Part 4: Is there a cure for ableism?

Part 5: Ableism Therapies

Ableism Awareness Wrapup Post

What is Ableism?

ableism, Autism, Disability, Education

[The following text is also a transcript for the featured image description]

What is ableism?

Ableism is a cultural disorder that can affect people’s language and communication skills, social relationships, and other interpersonal behaviors.

Symptoms may include:

* Deficits in respectful, disability-inclusive communicate skills; may include the repetitive use of language that discriminated against or excludes disabled people, and a failure to provide communication access to disabled people.

* Deficits in social-emotional reciprocity with disabled people, ranging (for example) from lack of empathy toward disabled people to failure to include disabled people in social activities; in severe forms, may include abuse, homicide/filicide, and/or total apathy toward the abuse of disabled people.

* Restricted patterns of discriminatory behavior, for example: insistence on segregating, mocking, and/or abusing disabled people; unusual interest in “inspiration pornography” that objectifies and demeans disabled people, etc.

Ableism is any form of discrimination or negative bias toward disabled people or disability in general.

Intro: Ableism Awareness Month

Part 2: How many people are affected by ableism?

Part 3: What causes ableism?

Part 4: Is there a cure for ableism?

Part 5: Ableism Therapies

Ableism Awareness Wrapup Post